The life condition of ichthyosis patients

The last day of February every year is a special day, Rare Disease Day, which was initiated by the European Rare Disease Organization in 2008. According to the definition of the World Health Organization (WHO), it is a disease in which the number of patients accounts for 0.65‰ to 1‰ of the total population. More than 7,000 rare diseases have been confirmed, and there are estimated to be 300 million rare diseases worldwide. This year, the theme of International Rare Disease Day is "Rare is many. Rare is strong. Rare is proud."

Zhangjian Ichthyosis Care Center and Beijing Anrentang Hospital organized a public welfare lecture on “The life condition of ichthyosis patients” on this day to let more people know about ichthyosis so that patients with ichthyosis are paid more attention by society. Many volunteers and people actively participated in the event. They are willing to participate in "Saving Ichthyosis patients Operation 2021" after they learned about it, and they also want to let more ichthyosis patients be aid by us.

“Saving Ichthyosis patients Operation 2021” be launched by Zhangjian Ichthyosis Care Center this year. And there are many patients from all over the world have applied for aid. At present, the quota for March has been filled. If you have applied for aid, please wait patiently for our reply. If there are ichthyosis patients who need help, please share this information with them so that they have a chance to be aid by us, or directly click the link below to apply.

http://en.shupiwawa.com/activity.php